Donna, sorry to hear that IV has created a worse scenario. I have heard of this happening in a few instances.  Head pressure can be built up of spinal fluid.  I am not a doctor, but I know 2 people that were in treatment that this happened with and they had to have repeated lumbar punctures to relieve the head pressure.  I would see a lyme literate neurologist.  Call ILADS.Org - go to their site and click on the contact link their number is there. They can help you find a LL neurologist or another LLMd that give you another opinion.  I wish you the best and pray you feel better.
God bless.

I have had severe head pressure that started after going on IV antibiotics, which initially just started as headaches before starting treatment. After two and half months of treatment, the head pressure became so bad that I informed my doctor I must stop for treatment for awhile. Since I have stopped, I thought I would get better. However, the head pressure has increased. Has anyone experienced this? What should I do? Now I also have nerve pain in arms and legs, and I’m losing function and mobility of these extremities. My doctor doesn’t want to resume antibiotic treatment. She thinks I might have Chiari. Please, any information or advice is greatly appreciated!

I agree.  It is absurd to complain about the cost of the film.  These are people who have to work as well.  They cannot work for free any more than you should be expected to work for free.  I am grateful to all of the people who worked so hard to put this film together.  I purchased several copies to give to my doctors.  I saw between 10-15 doctors before I was diagnosed and ultimately I had to diagnose myself which was backed up by blood tests.  I am forever grateful that this movie is out there raising awareness for Lyme disease.

Educating the public is the job of every Lyme patient, in my opinion.  However you choose to do that is up to you.  If you can’t afford to buy the DVD then provide the link for others to view, share the information you learned.  As someone with Lyme disease, I feel if I do nothing but complain about my having Lyme disease then I have literally done nothing to raise awareness.  I don’t want to put myself in the same category with Shapiro, Wormser, Steere, and their co-conspirators.  Many of us Lymies would not be where we are today if these men had the courage to speak the truth early on.  We might all have been diagnosed and treated early.  If I can help one person avoid this disease, then even that is enough to make me feel I made a difference. 

I already have Lyme.  The question now is, what am I going to do about it?  Well, I’m not going to sit and rot.  If I go down, then I go down fighting.